Published May 3, 2021
3 mins read
616 words
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Emergency Preparedness Tips For Parents Of Children With Special Healthcare Needs

Published May 3, 2021
3 mins read
616 words

April is National Autism Awareness Month. It is also a time of year when people must prepare for severe weather.

April, May, and June are peak months for tornadoes in many states. The Atlantic hurricane season officially starts on June 1.

Emergencies come in all sizes and affect people in different ways. All emergencies require some amount of personal health preparedness beforehand to stay safe and healthy during and afterward. At a minimum that means stocking up on emergency supplies, such as food, water, prescriptions, and backup power sources.

For Jennifer Silliman and her family, it means that and more. Her 11-year-old daughter, Allyson, has autism. They live in South Florida, where they’ve experienced over a dozen hurricanes and tropical storms since moving there in 2003.

Preparing for emergencies can be challenging for families caring for a child with autism or other disability. But a little preparation now can make a big difference when an emergency happens.

All children have unique needs during an emergency. Preparedness planning for children with special healthcare needs is often more complicated because they may have:

  • A hard time moving from one place to another,
  • Urgent or constant medical needs,
  • Difficulty communicating, and
  • Trouble with transitioning to different situations.

A disaster can present some or all these difficulties at once.

Having a plan for how to stay healthy, informed, connected, and calm is important. If there is a child with special healthcare needs in your family, your emergency action plan should include an emergency care plan.

An emergency care plan is important paperwork that you and your child’s doctor can write together. It’s used to communicate information about your child to caregivers. During an emergency, this could include teachers, grandparents, friends, and neighbors.

“My biggest fear is that Allyson would get separated from me and my husband during an emergency,” says Jennifer. “Allyson is nonverbal, so she cannot tell people where she lives, what her phone number is, or how to contact her parents.”

Because of her communication challenges, Allyson wears a bracelet that has her full name and her parents’ names and contact information. “She wears it all the time. She never takes it off,” says Jennifer.

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